The story of twin boys born at 24 weeks gestation, weighing 1 1/2 pounds each, of the struggles and triumphs faced by these preemies and their mother over the first 2 1/2 years of their lives.
Friday, December 01, 2006
20 Months
Spencer seems to have sprouted recently. Maybe it's because he's walking tall, taking up to eight or nine steps at a time; it looks like he's as long as Alex now. At last weigh-in two months ago Spencer was a little over 20 pounds, and Alex was almost 24 pounds. Who knows how much weight I'm carting up and down the stairs now. Spencer still has just six teeth, but is working on more. Alex has a mouthful. 10 at last count, with four more pushing their way through right now. They rarely seem bothered by teething, or much of anything really; they are such happy, good boys.
Alex repeats words from time to time but mostly babbles. He loves to sing to himself when he's happy, "la, la, la" and when he's upset he'll request to be sung to in the same manner. He even sings to his brother when Spencer is upset. It's the sweetest thing. Spencer's most frequently used words are "yogurt" and "Ally." The both say "I did it" and of course "mama." The boys babble to each other in their own little language and amazingly seem to understand one another.
Alex's favorite toy is the bead maze. He loves to move the beads up and down and can entertain himself for a long time that way. Spencer likes to climb onto his rocking horse and bounce, one knee under him and the other leg over the side. He also "talks" on the play phone, putting up to his ear and saying "hello." They're both easy to entertain and keep themselves and each other occupied much of the time. Alex is playing the toy piano now (while wearing his "rock star" shirt...Mommy doesn't have any aspirations for him musically, does she?). They both love the piano, and often play duets.
Favorite foods
Spencer: Yogurt, bananas, Annie's Mac & Cheese
Alex: Eggplant parm, chicken
Both: Applesauce, Goldfish, Fig Newmans, Kashi Heart to Heart, and Veggie Booty
Favorite activities
Trying to get into anything that is obviously off limits or out of reach
Playing with their cousins
Dumping toys all over the floor for Mommy to pick up
Climbing on top of each other
Things we're working on
Feeding themselves with a spoon
Walking
Drawing with a crayon
Learning body parts (they know mouth, nose, hand, foot, and belly) and how to treat others gently (the biting has significantly lessened)
Favorite toys
Anything with buttons and lights
Bead maze
Musical instruments
Little People castle
(okay, I admit, I have influenced them in the direction of the last two just a little)
Monday, November 13, 2006
Woo hoo!!!
Wednesday, November 08, 2006
Mommy Doesn't Live Here Anymore
*For those of you who aren't Grey's Anatomy fans, this is me trying to give myself a pep talk, Izzie style. Ah, forget it. If you don't watch you won't understand. Seriously!
Thursday, November 02, 2006
Wednesday, November 01, 2006
Friday, October 27, 2006
POTD 10.27.06
POTD 10.27.06
Originally uploaded by doublethefun.
One of the boys' favorite things to do when we first come down in the morning is to look out the living room window. I haven't put plastic up yet and the big windows get a bit frosty or dewy. I've showed them how they can "draw" in the dew with their fingers. Here's Alex enjoying his morning lookout.
Sunday, October 22, 2006
Picture of the Day 10.22.06
POTD 10.22.06
Originally uploaded by doublethefun.
Alex got new glasses, with an even stronger prescription. He's eating a Fig Newman in this picture. The boys love them.
Friday, October 20, 2006
Tuesday, October 10, 2006
Monday, October 09, 2006
Friday, October 06, 2006
Tuesday, October 03, 2006
Alex Says His First Word
Sunday, October 01, 2006
Saturday, September 16, 2006
I took Spencer in to the pediatrician for a weight check. The last time he was there was July 10th, and he was exactly 16 pounds. On Monday, two months later, he weighed 19 lbs. 11 oz.; that's nearly a four pound weight gain! He has also been off of Prevacid for three weeks now. I forgot to give it to him one day; by the time I remembered it was the end of the day and he was doing fine. I thought, "Why not try taking him off and see how he does?" He is eating and drinking just as much as always, and not spitting up. It seems Spencer's reflux has subsided, and now he's growing like crazy. He's actually getting a double chin!
Saturday, September 09, 2006
Thursday, August 31, 2006
Alex is Amazing
When Alex and Spencer were in the NICU one of Alex's primary nurses (Debbie, who I adore and miss) said she thought Alex would go home before Spencer. I thought she was crazy, what with all the challenges Alex had had and Spencer having had very few. Spencer did come home first, but promptly returned to the NICU because of an apnea. Guess which baby came home for good first: Alex! He has always and continues to beat the odds, to disprove what the nurses, doctors, and therapists forecast for him. I pray that all the parents of preemies out there who are so scared by the statistics would reject negativity and BELIEVE that their child can and will be a miracle. Though Alex's prognosis was very bleak when he was born I always stayed positive, as did the many friends, family, and even strangers who were praying for him and Spencer. I truly believe that all the positive, healing energy that was sent to them is in large part why they are here today, whole and healthy.
Friday, August 18, 2006
Monday, August 14, 2006
Saturday, August 12, 2006
I stood Alex up at the coffee table. He held on with one hand and banged on the table with the other. He stood there doing this for about three minutes without any assistance. He's my amazing catcher-upper boy!!!
Friday, August 11, 2006
Wednesday, August 09, 2006
Sunday, August 06, 2006
Alex Climbs
Alex Climbs
Originally uploaded by doublethefun.
It's hard to see in this pic, but Alex is actually climbing. He's developing so fast!
Alex and His Steed
IMG_1041
Originally uploaded by doublethefun.
"Do you mind? I'm workin' here. I think she needs an oil change."
Thursday, August 03, 2006
Rock n roll, baby, yeah!
Alex's "kissing" of his brother has gotten a little out of control. He gets Spencer in a headlock and slobbers (and I suspect bites) all over his head. Spencer does NOT like it, rightfully so. I have to pull Alex off, tell him "no," and try to explain that Spencer doesn't want him to do that and that that's why he's crying. He doesn't get it yet, but someday he will. Ah, it's the onset of having to repeat oneself indefinitely: one of the many joys of parenthood.
Spencer is pulling up to standing a lot now. He really wants to be vertical more than anything. I think I saw the beginning of cruising today, but there was a toy in his way and after I moved it he just wanted me to pick him up. He's been that way lately; he cries until I pick him up, then he's happy until I put him back down again. If I'm sitting on the floor he doesn't do it; somehow if I'm on his level he's okay. Spencer has been such a ham lately. My niece said something so funny about him last week; I wish I had written it down. It was something like "Spencer got the baby handbook and he's learning all the tricks in it." Yes, he knows he's cute.
Spencer fighting bedtime
Yesterday I took a video clip of Spencer riding the rocking horse by himself. He's learned to bounce himself up and down without assistance. I sing the Lone Ranger theme music while they ride. After Spencer gracefully a lit from his steed (fell off backward on his head) I had him on my lap and was showing him the video clip. He started bouncing himself up and down on my knee. It was adorable!
Wednesday, August 02, 2006
Thursday, July 27, 2006
Tuesday, July 25, 2006
Monday, July 24, 2006
Alex is commando crawling all over the place. He's totally keeping up with Spencer. In fact, watching him, I think he's going to do an actual crawl before Spencer. That's the thing about Alex: he always defies expectations.
Wednesday, July 19, 2006
We had a little carrot cake with the boys' therapists yesterday to celebrate their due date. The boys made such a mess that they ended up having the rest of their therapy session in the bathtub. They loved it. I hope they're not going to expect that every week!
Last week the boys went to the pediatrician for their 15 month check-up. Alex weighs 20 pounds, and Spencer is at 16. They are both growing at a good rate and are healthy. We don't go back for another three months, and then that's it. No more well baby checkups, and no more shots for awhile.
Spencer now has 3 teeth and is working on a fourth. Alex has five and is working on a sixth. Alex gets to go to the dentist earlier than most children. His teeth have come in discolored because of all the medications he's been on, but that's not a cause for concern. The problem is that he has a receding gum line on the bottom. His gums look like they are barely holding his teeth in. The boys get their teeth brushed after breakfast and dinner (if I remember). They seem to love it (I think it tickles them).
Alex's favorite new trick is fake crying. There's just one problem with his little act: he smiles while doing it. I look at him and say "What's wrong?" and there's this little indication of a smile on his face while he's screaming. I tell him "You can't smile and cry at the same time. It doesn't work. People won't believe you," and then he just breaks out in a smile. He hasn't given up trying, though.
Spencer is crawling and climbing everywhere. He's always falling and bumping himself. He cries, but then gets up and tries again. He even loves to crawl around in the bathtub, and doesn't mind getting his face wet. He's my little froggy.
I had a yard sale and freecycled a lot of things last week. The house is getting more cleaned up and organized. It finally feels like our little family is getting settled into our home. Family...home...I am blessed.
Tuesday, July 04, 2006
My mommy, she went downtown
She bought some spaghetti
She brought it home
Now she's chopping spaghetti
Chopping spaghetti
Chopping spaghetti
Chopping spaghetti
Thank you Dana Carvey, Nickelodeon, and Turkey TV for giving me a song I'll never forget and can even pass on to my children!
Tuesday, June 27, 2006
The Cheerio Wiggle
Wednesday, June 21, 2006
Alex began sitting up on his own without propping himself on his hands yesterday. He is getting so much stronger. Every day I see improvement. This despite the fact that he has had two surgeries in the last two weeks, the first to excise the scar from his ostomy takedown, and the second to reopen the new incision because it became infected. The kid has a big, open wound on his belly right now, which I have to pack with wet gauze several times a day, and he is just as happy as ever. He's such a trooper. I clap and cheer for Alex every time he works on his developmental milestones. Just today I began teaching him how to clap, too. It's so cute when he actually gets it right. We'll be practicing!
Tonight for dinner I cooked Annie's Organic Whole Wheat Shells and Cheddar for the boys. I chopped some broccoli and threw that in with the shells. This is the first time they've had "real" mac and cheese. I didn't cut up the shells at all, and they ate them. In fact they ate several shells at a time. They are eating like toddlers (and they look like messy toddlers when they're done, believe me). I love every minute of it!
The biggest change is that Alex and Spencer are now drinking regular cow's milk. I am so glad to not have to mix formula anymore, but it's just another reminder that my babies are growing up. I know they can't stay babies forever, and I'm looking forward to watching them learn and grow. I just wish I could still feel the way I did when I cuddled my tiny, warm, soft, precious babies against my chest.
Spence and Alex went to the park the weekend before last with their cousins. Here they are their first time in the baby swings.
Thursday, June 08, 2006
Click on either of the photos above to go to my Flickr site and see more.
Tuesday, May 30, 2006
Sunday, May 28, 2006
Spencer figured out how to make the "b" sound for the first time today. The way he scrunches up his upper lip to make the sound is adorable. He's so pleased with himself.
Saturday, May 27, 2006
Spencer Milestone
Friday, May 26, 2006
I watched the movie Little Man this past week. It's a documentary about a micro-preemie and his family. It paints a very accurate picture of life in the NICU, and of the effects having a preemie has on a family. The film was both painful and joyful to watch. Two years ago it would have bothered me to see some of the images in the film; now I see how absolutely beautiful this child is, what a miracle he is. Watching the film brought me back to the faith I relied upon when Alex and Spencer were in the NICU, and it reminded me of just how lucky I am that they are doing so well.
Monday, May 15, 2006
A Long Overdue Update
We've been living with family since the boys came home from the hospital. On May 1st we moved out on our own, into a little two bedroom house in a quiet village. We are still getting settled, but it's coming together. It's wonderful to have our own space, and so much of it. I even have my own washer and dryer in the basement. How lucky am I?!!
On May 2nd my father passed away of congestive heart failure. It was a shock and I still can't believe he's gone. He was Alex's and Spencer's Bhapu (that's Sanskrit for father). He was so loving with them. I have a picture of him down on the floor laying side by side with Spencer, playing. I'm so thankful that he knew them, but it makes me very, very sad that they're too young to be able to remember him when they're older. My father loved his grandchildren so much, and it showed. I hope that wherever he is, in spirit, he is watching them and smiling.
We celebrated Mother's Day by taking my mom out for a big brunch. My sister, her husband, four of their children, myself, and Alex and Spencer all went together. My mother is a wonderful mom and grandmother. She gives so much of herself, so much love, so much positive energy. We are blessed to have this bright, beautiful, spiritual, intelligent, loving woman as our matriarch. A lot of what I do as a mother to Alex and Spencer comes directly from what I learned from my mom. I get a lot of compliments on being a good mother, so thanks Mom for teaching me how to love.
Alex now has four teeth. He got his first one the six days after his first birthday. Spencer got his first tooth the weekend we moved into our house. They are both feeding themselves things like Cheerios and bread cubes. We are working on getting switched to whole milk. They eat a lot of vegetables, fruit, oatmeal, yogurt, and chicken, among many other things. I'm trying to instill good eating habits in them early on so they'll have them for life.
Alex and Spencer both babble a lot, primarily saying "da da da da da" to which I respond "ma ma." Alex just laughs at me when I do that. They have conversations with each other. They've become such good buddies. I love watching them play together, even when they're playing tug of war with a toy. Why is the toy Spencer has never as good as the one Alex has? I have finally separated them into two beds. They are rolling around so much that they were disturbing each others' sleep. I can't believe how much they've grown. They've come so far. One year ago Spencer weighed 2 lbs. 8.5 oz. and Alex was 3 lbs. 1 oz. What miracles they are!
Tuesday, March 28, 2006
My beautiful baby boys, my Allybear and Spenceroni, I love you so dearly, so completely, a love such as I never knew before I first laid eyes on your tiny, weak little bodies. We have been through so much together and you have come so far. You have beaten all the odds, all the statistics, and I am in awe of how healthy, strong, vibrant, and wonderful you are. I hope with all my soul that I bring you half as much happiness in this lifetime as you've brought me in the past year. You are my heart's joy, my precious miracle boys.
Monday, March 13, 2006
The boys were weighed the Friday before last and both gained 1 pound 4 ounces in a month. Alex is up to 17.4 and Spencer is at 13.4. Spencer is finally gaining at the same rate as his brother. He still seems like a little peanut, but he is really growing.
Alex started rolling over from his belly to his back that same Friday. He is doing so much better with lifting his head while on his stomach, and is even beginning to bear a little weight on his arms in that position. We've also started working on sitting up.
I've been planning the boys' first birthday party. They will be christened that morning at the same church I was christened at as a child. Then we'll celebrate at my parents' house with family and friends. I realize they won't understand the celebration, but I'm going to spoil them rotten. Lots of balloons and presents and cake from my favorite bakery. It will be a special day for me, and I'll make sure there are lots of pictures taken so that I can share the memories with them when they're older.
Here are some recent photos.
My favorite picture of Spencer and Alex so far
Spencer during floor play
Alex during floor play
Alex trying a bagel
Spencer trying his sippy cup
Tuesday, February 21, 2006
Saturday, February 18, 2006
Best Buddies
A week ago yesterday I took Spencer to the pediatrician for a weight check. He was up to 12 pounds 10 ounces! This week he started taking between 8 and 9 ounces per feeding, when just last week he was taking 6.5-7. The Prevacid has really helped his voice, too. He doesn't sound like he has laryngitis anymore, and he's been babbling more.
Xander's physical therapist told me Thursday that she believes his torticollis is resolved; the tightness in his neck seems to be gone. Now the task is to strengthen his weak neck muscles. We're working on it every day. He seems to get a little stronger every week.
My niece, M, helps out a lot with the boys. She and her mom (my sister) are both twins. There's a distinct possibility M could be a mother of twins someday. Something tells me she'll be a natural at it.
Monday, February 06, 2006
Almost Famous
I took Alex by the NICU for a quick visit with one of his former primary nurses. She ducked into the March of Dimes volunteer's office and returned with a humongous print of me kangarooing Alex and Spencer. The volunteer takes beautiful pictures of babies and parents during their NICU stays and uses them (with permission, of course) as part of her program. Apparently she is now going to be hanging several of her photographs, including the one of us, around the NICU. Now I really need to send an "after" picture of the boys up there so that other parents might be encouraged by my miracles.
I'll try to get some of those pictures scanned in and posted here. They really are beautiful and priceless. Thank you, Lori!
Sunday, January 29, 2006
Another Milestone
Aunt G makes Spence laugh
Xander now has a Boppy Tummy Play pillow, which was recommended on the Torticollis Kids website. I wish I had gotten this sooner. He's had a lot of trouble learning to lift his head while on his stomach. I put him on the pillow for the first time and he just took off. It is just the right height to support him and he loves playing with (and teething on) the attached toys.
Xander's Tummy Time